Services to support people with dementia and their carers

Services to support people with dementia and their carers

Dementia

is the word used to describe the symptoms of illnesses that affect the brain. It is not one specific disease. Common dementias are

Alzheimer’s disease

and vascular dementia.

Dementia causes a progressive decline in a person’s functioning and affects a person’s thinking, behaviour and ability to perform everyday tasks. It also affects their senses of sight, touch, taste, smell and hearing.

The risk of getting dementia increases with age, but it is not a normal part of ageing. Dementia can happen to anybody, but it is more common as people age affecting 30% of people over the age of 85.

Services are available in Victoria for people with dementia, and their families, carers and friends.

National Dementia Helpline

The

National Dementia

Helpline

External Link

is an Australia-wide, confidential telephone information and support service.

The helpline is staffed by trained and experienced professionals and can help:

people with dementia and their family and friends

staff caring for someone with dementia

anyone concerned about memory loss.

The helpline offers practical information and advice, and staff can tell you about the services provided by

Dementia

Australia

External Link

.

You can call the

National Dementia

Helpline

External Link

on Tel.

1800 100 500

(24 hours).

If you need an interpreter or advocate, the helpline can provide access and referral to an appropriate service. People who are deaf or have a hearing or speech impairment can phone the National Relay Service on Tel.

13 36 77

.

Cognitive Dementia and Memory Service (CDAMS)

CDAMS

External Link

is a specialist service that helps people with memory loss, or changes to their thinking, and partners, carers and friends who support them.

CDAMS provides:

expert clinical diagnosis

information on appropriate treatments

education, support and information

direction in planning for the future

information on dealing with day-to-day issues

links for people with dementia and their carers to other services and community supports.

A CDAMS assessment includes medical and allied health consultations and may include a visit to your home. Other specialist assessments may be conducted (for example, neuropsychology). CDAMS will discuss the outcome of these consultations and recommendations with you and, if you agree, with your carer and doctor.

If you or someone you are caring for are experiencing changes to your memory and thinking you can contact CDAMS for information and advice. You can ask your local doctor or community health centre for a referral to CDAMS or refer yourself directly.

Clinics are located across metropolitan Melbourne and regional Victoria. To find a public or private clinic near you go to

Australian Dementia

Network

External Link

.

Dementia Support Australia

Dementia Support

Australia

External Link

helps people support someone with dementia in situations when their behaviour is impacting on their care.

Dementia Support Australia can:

assess the person with dementia

provide clinical support, information and advice (face to face, over the telephone or via email)

help with care planning and short-term case management.

Assessments are free of charge for people demonstrating behavioural and psychological symptoms of dementia, and DBMAS can make referrals to other support services.

Call the Dementia Support Australia 24-hour telephone helpline on Tel:

1800 699 799

Services for people caring for someone with dementia

The physical and emotional demands of caring for someone with dementia can be high. If you are caring for a person with dementia, you may also need support so you can look after yourself. It is easier to continue your care role if you take time out to recharge.

Organisations and groups can help and support you if you are caring for someone with dementia.

Dementia Australia

Dementia

Australia

External Link

offers counselling, information, education, training and referral services.

Information about dementia is available in community languages.

To find out more about Dementia Australia call Tel.

1800 100 500

or visit the

Dementia

Australia

External Link

’s website

Carers Victoria

Carers

Victoria

External Link

provides advice, counselling services, practical information and support to partners, carers and friends. They can help you arrange respite care and have information in many community languages.

Call Tel.

1800 514 845

or visit the

Carers Victoria

website

External Link

.

Support groups for carers of people with dementia

There are formal and informal support groups and networks for people with dementia and for their partners, carers and friends. You might find you feel reassured by catching up with others and getting help from people who share similar experiences.

Carer support groups bring together partners, carers and friends of people with dementia, sometimes with a group facilitator. To find the location of your nearest support group, contact the

National Dementia

Helpline

External Link

on Tel:

1800 100 500

, 24 hours a day.

Respite care and short-term stays

Taking a break for a day, a weekend or even a week or more is one way to recharge for your care role. You might want to go away for a holiday, or attend an event interstate. Or you might need to go to hospital for a short stay.

You can arrange respite services to take over your care duties while you are away from home. Services and programs can help you take time out so you can take care of yourself.

The

Commonwealth Home Support

Program

External Link

provides access to respite services. You can contact them through My Aged Care on tel:

1800 200 422

.

Aged Care Assessment Service (ACAS)

For an older person to access Commonwealth-funded residential respite care, they must be assessed as eligible by an ACAS. ACAS is called Aged Care Assessment Team (ACAT) in other states.

To arrange an assessment, call Tel.

1800 200 422

or visit the

My Aged

Care

External Link

website.

Where to get help

Your

GP (doctor)

Your

local

council

External Link

Your local community health centre

National Dementia Helpline (Dementia

Australia)

External Link

, call Tel.

1800 100 500

Aged Care Assessment

Services

External Link

My Aged

Care

External Link

, call Tel.

1800 200 422

Help for Victorians with dementia and their

carers

External Link

Carers

Victoria

External Link

, call Tel.

1800 514 845

Council on the Ageing

Victoria

External Link

.

Personal Alert

Victoria

External Link

Palliative Care Advice

Service

External Link

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